tag:blogger.com,1999:blog-1439482583787601133.post7437432908457239878..comments2023-06-28T04:41:05.527-07:00Comments on Sawyer's Heart: CHD Awareness Week - Luke's StoryMichellehttp://www.blogger.com/profile/15710038316098143052noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1439482583787601133.post-72822876050204367762013-02-14T21:22:24.319-08:002013-02-14T21:22:24.319-08:00Bernie, much love to you. Standing beside you duri...Bernie, much love to you. Standing beside you during this time broke my heart truly. Reading your story again (now that I'm also a Mom and went through 57 days in the NICU with our Dylan recently and had to fight for him tooth and nail on a daily basis, while also experiencing bradycardia, apnea, extreme reflux and vomiting, cyanotic color and also a heart murmur) breaks my heart in a whole new light. A Mother is always the #1 advocate. Please never doubt yourself and all you gave for Luke during his short time here. He's the one who one the prize there. Love to you from a long time friend and Mom of a little boy who needs my prayers and advocacy as he continues his life. Thanks for inspiring me to stay strong!! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1439482583787601133.post-21620306543747015252011-02-10T22:30:39.840-08:002011-02-10T22:30:39.840-08:00His picture is beautiful. Thank you for sharing th...His picture is beautiful. Thank you for sharing the story of Tunis amazing part of your family.The Good, The Bad, & The Familyhttps://www.blogger.com/profile/08241017938203744301noreply@blogger.comtag:blogger.com,1999:blog-1439482583787601133.post-5501012853874621212011-02-09T18:42:50.102-08:002011-02-09T18:42:50.102-08:00Your words are so true -about being your child'...Your words are so true -about being your child's advocate - and my heart breaks - your story so different, your story so similar... too similar. My heart to you.Laurahttps://www.blogger.com/profile/01636940968443803811noreply@blogger.comtag:blogger.com,1999:blog-1439482583787601133.post-27644902141140765072011-02-09T18:42:31.153-08:002011-02-09T18:42:31.153-08:00I am so sorry for your loss. I am in tears reading...I am so sorry for your loss. I am in tears reading this. My son Jacob was born March 23, 2010 with HLHS and a intact atrial septum. Please do not guilt yourself about trusting your doctors. This is not a typical situation in any sense of the word and our doctors are who we depend on to get through this. I almost lost Jacob more than once. He is doing very well now but of course the future is unknown. I take each day as a gift and like you said I trust my instincts and am pushy no matter what. Love to you and yours. Jacob's story is at jacobsspecialheart.blogspot.comKathy Bakerhttps://www.blogger.com/profile/04770278646550731651noreply@blogger.comtag:blogger.com,1999:blog-1439482583787601133.post-43086721210307420202011-02-09T18:27:09.769-08:002011-02-09T18:27:09.769-08:00This gives me chills. I thank the OB/GYN that I ha...This gives me chills. I thank the OB/GYN that I had in NH at Bedford Commons OB/GYN and the Fetal Cardiologist at Dartmouth Hitchcock time and time again because it was that 23 week ultrasound that revealed my daughters heart conditions. It was that day that changed my life forever, and it was that day that made me grateful for her time and time again. Some doctors are easy to dismiss, but not all. It is this reason why I aspire to become a Doctor someday... so I can share with people my story, and how not all doctors dismiss peoples concerns... Lets work together to make people CHD Aware...<br /><br />So sorry for your lossApril Marie Driessehttps://www.blogger.com/profile/10505080245155147314noreply@blogger.comtag:blogger.com,1999:blog-1439482583787601133.post-57833474266131439712011-02-09T18:22:52.597-08:002011-02-09T18:22:52.597-08:00Thank you for this post. I am not dealing with a h...Thank you for this post. I am not dealing with a heart defect, but I have been trying to get some help for my son that has not developed since 4 months. That was 5 months ago. It has taken forever. Now I am finding out that he may have Cerebral Palsey. I am trying to be his advocate but it is hard to stand up to doctors. They make you feel like you are dumb.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1439482583787601133.post-46304812866029097312011-02-09T18:01:44.728-08:002011-02-09T18:01:44.728-08:00Such chills. I always say to parents that the 20 w...Such chills. I always say to parents that the 20 week u/s is about much more than finding out gender, but didn't realize doctors needed that reminding as well.Anonymoushttps://www.blogger.com/profile/06679832505983089584noreply@blogger.com