Sawyer's Heart: CHD Awareness Week

Tuesday, February 8, 2011

CHD Awareness Week - Gwenyth's Story

February 7th through the 14th is Congenital Heart Defect Awareness Week. Every day this week, we will feature one guest post from the parent of a CHD warrior or angel. This is baby Gwenyth's story...

Gwenyth was born with a congenital heart defect (CHD) called Truncus Arterious type I. She had surgery two days after birth and was doing so well. She came home only to suddenly be taken away just shy of two months old. Based on the little bits of info the doctors have to go on, it appears to be a virus that took her life. No huge symptoms gave us any foreknowledge and it was too late by the time we took her to the doctor.

Awareness=Funding=Research=Hope=Life

Gwenyth's mother, Laura Carpenter, wants everyone to know about the #1 birth defect. To read more about baby Gwen and Laura's journey through loss please visit http://www.gwenythcarpenter.com

2 comments:

Unknown said...: <3 Gwenyth <3; February 8, 2011 at 12:45 PM
The Good, The Bad, & The Family said...: What a beautiful baby girl. Thank you for sharing.; February 10, 2011 at 10:32 PM

Post a Comment

Sawyer's Story

Sawyer Erik Williams was born on June 1, 2010 - at 28 weeks gestation and exactly three months before his due date. Just two days later on June 3, 2010, Sawyer died in his mother's arms.

Sawyer's life was cut drastically short by a congenital heart defect. He was diagnosed with a severe form of Tetralogy of Fallot and had many complications including a large hole between his left and right ventricles called a "ventricular septal defect" and "pulmonary atresia" - an extremely rare CHD in which the pulmonary valve does not form.

Sawyer's spirit lives on in the hearts of many who he touched so deeply in his brief life. May this blog be of comfort to other mothers, fathers, grandparents and families who have experienced the deep pain of infant loss.